Sharing stories of fear, frustration, hope and acceptance

Posts tagged ‘Long hospital stay’

Hospital Fatigue

There’s truly no place like home.

It’s been five weeks that Adam has been hospitalized. Its getting harder and harder to have patience with this whole hospital scene. Doctors, Residents, Fellows, Nurses, Respiratory Therapists. Some, if we are lucky, take some time to get to know Adam, but two or three days later they rotate…

I’m tired of this place. I just want to pull Adam free from all the tubes and machines, free from all the labs, and tests and doctor-lingo (short for “we don’t know”).

I KNOW IT’S ALL TO HELP HIM!

When he opens his eyes I have to remember to breath. My heart starts beating real fast, almost out of my chest! I get so excited because it’s one step closer to home. I can’t help but to wonder how Adam must feel. Can he see me, does he sense I’m always here? I know he wants me to hold him. I know he misses his momma because I really miss him too!

Some might say I should be thankful because things could be much worse. At this moment I don’t care- I just really want him to be well already. I want to take him home where our world is free from diagnoses, home; where we can close the door to strangers, home; where he and Frankie can play, forget about all things “wrong” and just be thankful for what is right. Home where we can Sign and he can cruise and bang the walls all up in his “BMW”.

HOME WHERE HE CAN BE OUR ADAM AND NOT JUST ANOTHER PATIENT.

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