Sharing stories of fear, frustration, hope and acceptance

Us 

I am a mother of two boys, Frankie, (hearing) is six and Adam (Deaf) is two. DeafChildrenNear is our family’s story as hearing parents of a deaf child with special needs. I want to share our experiences and lessons with other families who may be on the same journey in hopes that we can share support and stories. At this time Adam has been hospitalized for a over three months due to Epilepsy and I have been told that some posts made people cry… This was not my intention but it was important to share the realities families like ours face. Adam just was diagnosed with Cortical Dysplasia as the cause for his recent seizure activity and just received Restrictive (removal) Brain Surgery. We still have a lot to learn about Adam’s situation, You are welcome to follow my posts to learn more about how we are finding our way through this unimaginable situation.

Advertisements

Comments on: "Us " (3)

  1. priscilla lazrovich said:

    I don’t even know where to begin?? But all I’m going to say is your doing a great job, stay strong and keep the faith!! We love you guys!!<3

  2. Praying for you and your family!
    May God continue to bless you all, and bring purpose to this pain.

  3. Adam is slowly making progress. Doctors have discontinued one seizure med and are currently weening another. He is no longer on the Keto-genic Diet which is a complicated diet to help with seizure control. He is also less sedated and more and more able to breath on his own. We have a long way still to go. We are grateful for each step and so proud of our boy.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: