Sharing stories of fear, frustration, hope and acceptance

Archive for April, 2014

HAPPY 5th Birthday Adam!

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First, I need to thank everyone who has prayed and offered their support to our family in anyway. The past five years we’ve been through ALOT and YOU have helped us through. Thanks to all the prayer warriors out there!
Keep it up!

After everything Adam has been through HE STILL SMILES. Truly there has never been a smile that shines so bright! To know Adam is to fall head over hills in love. It’s a special kind of love. One that he exudes generously to all who BELIEVE. It’s God’s love as innocent and pure as it could get, its direct from Heaven.

I’m his mom-so blessed. I wish him a happy birthday so grand even his little Deaf ears hear it. I wish him/ pray him more hours alert, more purposeful movement, more play and a stronger immune system to protect him on more family outings. None of these things money can buy. None of these can be put in a box and gift wrapped but just imagine when they come true! Imagine how good Adam will look doing them!

Yesterday we took Adam to church and held a special mass to give thanks for all he has overcome. Family and friends gathered and prayed and after we went home to have cake and icecream, including Adam. He had a wonderful time. Thanks Be to God.

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Things to do; Places to see

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So much fun is happening around here! FINALLY!!!! We are continuing to reduce seizure meds on Adam. It’s been a long year and FINALLY Adam is slowly showing consistent, positive responses.
He is more attentive, his eyes are wide awake and smiles/ smirks more often, he is re-learning about peek-a-boo and patty-cake and bubbles.

He has a new dog named Mia. Mia loves to be by Adam mostly when he takes her cruising in his wheelchair.

Adam has gone HORSEBACK RIDING!
Yes! See picture to prove it!
He started horse riding therapy.
His first time was last Tuesday.
Watching Adam ride away on the horse (of course with therapists all around him) was one of the highlights of my life. I felt like I was letting him ride off into the sunset, to land of pure happiness. As I stood there I realized this precious moment in life had taken my breath away and I could only whisper, “GO ADAM GO” as tears of pure blissful joy skipped merrily down my cheeks. It was the BEST PLACE THIS CHILD HAS EVER BEEN. Can’t wait to go back.

He lost a tooth!! A TOTAL SURPRISE!
Thank goodness the nurse was with him and calmly went fishing for the missing tooth. I would have freaked!

Let see… What else…
Oh. The park. Adam also went to the park with his big brother Frankie.

Adam is truly turning a corner.
Each day I’M SO SO THANKFUL TO GOD. Words don’t describe. He is making a comeback… More and more this Adam resembles “old-Adam”, “healthier-Adam”. I’m realizing that he never left…. Adam’s personality NEVER left. It NEVER changed. It was/is there for the unveiling. I am more hopeful and more determined.
LETS DO THIS ADAM!!!