Sharing stories of fear, frustration, hope and acceptance

Archive for June, 2012

A Special Prayer


Dearest Lord,
Teach me to be generous.
Teach me to serve you as you deserve;
To give and not count the costs, to fight and not heed the wounds; to labor and not ask for reward, except the reward of knowing that I am doing your will. Grant me Your peace through out the day.

Adam continues to slowly improve.
The doctors are using the word “Home” more often.


Quality Not Quantity

I realize a little more each day that Adam’s health, Adam’s situation will affect how people perceive him and how much they interact with him.
In order to get to know a person like Adam it takes patience, real day to day, moment to moment patience.
It will take observation and practice interpreting each blink, each squeeze of his tiny hands.
Today I showed him his favorite book, the book he used to LOVE to flip through. He’d turn each page like a little boss. There was real power in turning each page, he would turn all the way to last page- very seriously than at the end he’d look up and smile.
Awe 😦 The last time I saw him do this was February 5th 2012 the day before he went into status for 16 hours.
The point is that today he was awake enough to look around, so I showed him this book. His eyes looked at each corner of the page and than again. When he was done or not at all interested in a page he wouldn’t give the page a second look. This told me he was ready for the next page.
A lot of effort to understand, to get to know, my little baby man. Am I lucky for being able to experience this bond? Are others unlucky because they won’t have the fortune or the time to spend engaging in a relationship such as ours. Is it best to have multiple relationships with average exchanges or few with much greater return?

No words, nor movements, just what comes from his spirit through his eyes to my heart.